Oct 25...

Well our poor little boy keeps having small roadblocks get in the way, but he is stepping right over them. Today the pedatric surgeons looked at his tummy again and found out he has a hernia. This seems to be common for preemie baby boys they are telling us. They will do surgery but not until he gets bigger. The hernia is a result of his previous tummy issues and his bowel poking thru. Other than that he is requiring only 25 % oxygen, which is great news!!! They are trying to figure out what type of infectgion is going on so they are doing a couple studies to see plus waiting to see if the blood culture grows anything. Depending on how his tummy continues to look and if they determine what type of infection he has going on they may start his feedings again this weekend. The medications are definetly helping him to feel a little better, although the tummy is understandably still very sore, he is doing great from a respitory standpoint. Last night Dylan was really awake when we were there and studying his daddy. He wouldn't let his daddy leave his bedside, it was cute. Dylan was squeezing his mommys finger tightly and staring into his daddys eyes. He is fighting away and last night the head doctor even told us what a fighter we have! That is very assuring when a doctor says that, Dylan has a little reputation already! Mommy and Daddy just knew this from the beginning, we are praying for you little buddy!!

Oct 23,24..

Dylan has had a hard past couple of days. Poor little guy hates that vent tube and decided to pull it out again yesterday. So they had to put it back in but got it in wrong the first time so they had to pull that one out and put another new one in. This tube is bigger so this will help him not have so many air leakes. The issue with the air leak and the small tube was that as fast as the air was going in it was leaking out because the tube was so small. So they put Dylan back on the high frequency vent to let his lungs not be so collapsed. Well also the poor little guy is now showing signs of another infection. They are concerned with his tummy, they have done several x-rays and so far it is looking okay but when they touch it Dylan just cries and cries. It is a little puffy and red, he had a large stool today with a few signs of blood flecs in it. This is concerning but they are just watching him very closely. They have now stopped his feedings for the mean time and started him back on a full course of antibiotics. This will help what ever type of infection is going on in him. They did a blood culture which unfortunately will not show anything for at least 72 hours. Being the fighter Dylan is, he will get thru this. This is just one of those steps back for now. He is not giving up and we know that his big brother Dalton in heaven is protecting him and giving him the strength he needs so he can get better and come home with his mommy and daddy. These are scarey times again but we will get thru it, we still are holding onto the optimistic feeling of hope we have. This is how we are getting thru these hard days. Our baby is daddys little superman. We love you Dylan and are praying for you day any night little man.

Oct 20,21,22

Dylan had a great weekend. Mommy even got to Kangaroo with him, this is the first time doing it at the UIHC. He loved it and mommy did too. They do things a little different there, they only let you do it for the max of 1 hour and you hold him in a recliner versus laying on a bed. It was a great experience. They ended up changing Dylan back to the Star type vent, this is because the new computerized one he was on that didn't make any noise, it was giving him breaths when he didn't necessarily need them. This Star type vent is better for wheaning him back towards the CPAP. They plan on getting him back to the CPAP, which is the tube in his nose versus his throat, in the next 2 weeks or so. They have up'd his feedings now to 7 cc's every 4 hours, he is handling them well. He has even pooped on a regular basis now, this is HUGE news considering the tummy issues he had before. He is still destating every now and then but the Dr. said today this is just part of him being a preemie baby. If he was inside his mommy he would only be taking 4 breaths per hour and now that he is born we are expecting him to take 60 breaths per minute. So it is understandable that he gets pooped out every now and then but he is doing great breathing on his own!!! So our little miracle is still fighting, and he is getting bigger. He is 1 pound and 14 ounces today and looking bigger every time we see him. He will really look HUGE when he gets to 3-4-5 pounds when in reality he will still be just a little guy. We are having small positive baby steps which is great, but there is still a long road ahead so keep those prayers going! We love you Dylan.

Oct 19,20...

Dylan is doing wonderful!!! In the past two days they have been able to increase Dylans feedings to every 4 hours and from 2 to 4 to now 5 cc's. He is digesting everything all of the time. They have went down on his vent settings and he is between 35-40% oxygen. They have said that they could easily put him back on the CPAP but because he is so small they don't want to do that and then have something happen and have to put the vent tube back in. So rather they are just going to leave the vent tube in with low settings like he is on and let him grow then they will change him to the CPAP. He did have 3 dirty diapers yesterday which is great!! They ended up giving him a dhiratic or something like it for him to get rid of some of the extra fluid he picked up after surgery. He has gone potty a lot since this and it has helped quite a bit also. They just didn't want his body absorbing this extra fluid. He is just over 800 grams today and looking good. He is so active and loves to sleep on his tummy. He gets his legs under himself and pushes his body forward and up in the air, it is hilarious! He definetly trys to act like daddy's little superman!! He is still off all of his medications so we are praying for NO infections!!! We just want him to sleep, stay healthy and grow so he can come home with mommy and daddy soon!!! Pictures to come this weekend, I promise!!! We love you Dylan!

2 Days Post Surgery...

It has been two days now since our little star went thru surgery and he is doing GREAT!!!! He is such an amazing little boy, I know that Brad and I say that so much thru the day but it is true! Today he is down on his vent settings, yesterday they started feedings again and today they increased the feedings. Today he is down to room air for oxygen which is truely amazing and his blood oxygen is at 100% which is amazing to. They have stopped all of his antibiotics which is great but scares us a little because now more than ever he is suceptable to anything... as far as sickness goes. So we have to be very protective again which we had planned on anyway and I would think that most people would understand, we sure know that Dylan does! So they have also stopped his Morphine and yesterday they took out the drain under his arm from surgery. So we are definetly moving in the right direction, he must be very anxious to meet his puppy waiting for him at home!!! I am not sure of his weight right now but hopefully it will increase as the feeding do. He is still going potty a good amount we are just waiting for him to go #2 since the surgery is over with. So daddys little superman as Brad calls him is doing great, we know that all of those prayers are working!!!! We all love you Dylan!!!

Surgery day...

Well today was the PDA ligation to close the open ductus in Dylans heart. He did very well with the surgery, as well as expected. The ductus was actually quite large, larger than expected so they ended up using a metal clamp instead of a suture. (sp) As long as his body excepts the clamp the tissue etc will just grow around it. The next 24-72 hours may have a few steps forward and backward as the doctors really monitor him. His body needs to get use to the blood flow going the right way instead of the wrong way as it was before with the ductus open. So our little fighter is still fighting. He is heavily sedated and they say it will take possibly a couple of days before everything wares off. We couldn't ask for anything more than what we have now, a baby who is getting healthier and stronger by the day! God Bless you little man!

Oct. 13,14,15 (1 month old today)...

Well Dylan has had a pretty good past couple of days. They have begun feeding him again which he is loving a ton! They ended up putting his vent tube back in on Friday. He was handling the CPAP very well but his blood gases showed that he was getting a little tired of breathing on his own and since he has to have it in for his surgery tomorrow they decided to put it back in to give him a little more rest. He has pooped several times which is even better news, this is especially great news because of the issues with his tummy. Mommy has been changing his diapers reguarly now so I am all broke in, we just have to get daddy into this habit!! Tomorrow is the PDA ligation to close the open ductus in his heart. The surgery is expected to take an hour or so and they do it right in his room which is good because they don't have to put him thru the stress of moving him to the OR etc. Mommy and daddy are a little bit nervous but the doctors and specialists here are the best so that makes us more comfortable. Starting tomorrow he gets a new doctor as the staff doctors have 2 weeks on and 2 weeks off. But we have been told that the staff doctor coming on is the head doctor so it will be just fine. We totally trust them but we have been so comfortable with his previous dr. and it is hard to see a new face and get use to new ways of doing things. Other than that things have been pretty relaxing which is what we like. The little fighter is still fighting, and that is what we want!!! He opens his eyes and studies his mom and dad when we are there, it is precious! We can't wait to bring him home and we are starting to get his room ready now for that wonderful day to come!!! We pray for you little buddy as you have surgery tomorrow, your big brother Dalton is watching over you and making you stronger every day!!

Oct 10/11th

Well the little fighter is still fighting, so much that he pulled out his vent tube overnight last night. So they decided to put him on a different type of support called CPAP, this is a tube in his nose that is giving him a little amount of support per minute but most of it he is doing on his own. He seems to be tolerating it pretty good but they may have to go back to the other type of vent with the tube in his throat in a day or so. He is scheduled to have surgery on Monday to close the PDA in his heart. Mommy is pretty nervous about him being sedated again but we know that this is what he needs. He is still going potty a good amount, this is great news!!! And he is looking really really good too. Daddy said that with the tube out of his mouth he has found his hand and thumb more than ever before. So things are looking good, the little guy is still being a fighter and we are more and more proud of him everyday. Daddy finally was able to hold his little boy last night for the first time. It was the most precious moment ever, I took pictures as I watched the twinkle in his eye as he held his son for the first time. He was a little nervous because Dylan is so small but he didn't show it a bit. Keep fighting Dylan there are lots of people praying for you little guy!!!

Oct 9th / Weekend update...

Well the little guy had a great weekend. He is looking great and is at 1 pound and 15 ounces for his weight. On Saturday they had to do a small emergency procedure. From the drain he has in his tummy some of his bowel started to poke thru from him being so active. So they had to sedate him and put a stitch in and so far so good there. I was a little nervous having him sedated again but he handled it well and is back to opening his eyes when Brad and I talk to him and moving around a little more. Today I was just in his room and a team of 6 surgeons came in to check on his tummy they decided spur of the moment to take out the drain in his tummy. They thought it looked good so I watched them while they did that. He only dropped his heartrate at the beginning and he handled it very well. He kept putting his hand up on the surgeons hand as if to say, "that is enough already."!! So he is down on his oxygen and vent settings which is great. He is still going potty a good amount which is good too. They thought this morning that they were going to have to put in that Central Line but this afternoon they decided that he is doing good so they are going to leave him alone for now and not do it. But it is always an option if need be tomorrow or in a couple days/ weeks from now. So we are maintaining which is what we like. He is such a fighter and really is trying hard to get himself better you can tell that just by looking at him. He is a sweetie and we are so proud of him and his strength. It is amazing how much you can learn from a little guy who is so small yet has such an amazing strength about him!!!

Oct 6th / Iowa Homecoming weekend....

Well today is a pretty good day. Iowa homecoming is this weekend and people are definetly showing team spirit around this neck of the woods. Brad and I are actually staying in Iowa City tonight to prevent us from driving back here in traffic tomorrow and trying to get a parking spot. Dylan is showing his team spirit with and Iowa Football blanket on today, it is pretty cute. His dad will appreciate that as we are big Iowa fans in our family! Dylan is down to 1 pound and 13.5 ounces, this is expected as he is getting out some of that extra fluid he has retained. He will probably have to have a small operation on Monday we were told today. They are having a hard time getting IV's in him, last night the flight nurse tried and was unsuccessful. So with this operation they will put something in him that is similar to a port. This way they will be able to draw blood from this as well as admin meds thru it. I am a little scared about this but it will prevent him from being poked all of the time, his heels are looking pretty "ouchy" from being poked several times per day. So they are probable they will have to do this on Monday but wanted to tell us about it today incase his hemoglobin gets any lower and they have to do it this weekend. They are still planning for surgery to surgically close the PDA (duct around the heart) in 7-14 days. They are weaning him off of one of the meds that is keeping his blood pressure up, it has been good so they decided to wean him off that. His blood cultures are still negative which is great news but he still does have the Grand Negative bacterial infection in his trachea, this is concerning but we pray it gets better though it probably won't be gone over night. The incisions they made on the side of his tummy are still looking good, the surgeon came in today and said that the tubes may actually back out on their own when they are ready. This is great news but they will continue to watch this closely. So we are still showing some positive baby steps but still a long way to go. He is a little fighter and continues to remind us of that as he still trys to move his head forgetting his vent tube is in his mouth and he can't do that. Today he found his hand and we have caught him with his fingers in his mouth a couple of times. It is so sweet!!!!! So pray for a good weekend, we will take these small positive baby steps any day for our sweet little boy!

Oct 5th...

Today is another pretty good day. Just a few new things have come up which unfortunately is to be expected. Dylan has continued to go potty which is great news. It has leveled off a little bit which is to be expected. His weight is down to 1 pound 15 ounces. Since midnight last night Dylan has had some epidodes dropping his heartrate and oxygen levels. They were occuring more and more so they have made some changes so his vent. Instead of having a continuous vibration from his vent he is now getting 20 breaths per minute from the vent. They are monitoring this and if need be they can increase it to 30 breaths per minute. They are thinking that this is a result of him having apnea, they are giving him the benefit of the doubt because he is afterall only 26 weeks and 4 days gestation. The second thing is that after the Echo yesterday they found that the PDA or duct in his heart is still open. Yesterday they were unable to hear a murmur but this morning they were. They will not give him medicine for this as St. Lukes did, rather they will do surgery to fix it within the next 7-14 days pending his tummy situation. The NEC or tummy situation is looking stable, they will continue to monitor that. The blood culture from the 29th is still negative and that is final. The one from the 2nd is still negative and they will continue to monitor that. They did another one here at the U last night and will watch that. The fluid from his trachea they took the other day is showing signs of the Grand Negative bacteria which is the infection he had before. He is already on medicine for this which is good. So overall a pretty good day, these small baby steps are good news. Brad will be up tonight he hasn't been up to see him in over two days, he is in for a real surprise, they little guy looks great!!! Keep praying, our little angel sure is!

Oct 3rd & 4th Potty today!!!

Today has been a wonderful day. Dylan started going potty again today. We have never been so excited about pee in our whole life!!! This is such a positive sign as the renal function was a huge concern this past week and a half or so. Dylan is up to 2 pounds 2 ounces or just over 1000 grams with his actual weight without the fluid retention being just over 600 grams. My mom and I and my aunt who actually works here at the UIHC listened as the doctors made their rounds this morning. His platelat (sp) levels are up which is good and the blood culture from the 29th and 2nd are still not growing anything which is even better!! Dylan looks great today, he is moving around and showing much improvement. They did another head ultrasound today and it looks good. They did an Echo on his heart and it looks like the prelimenary results are that the PDA is still open. We will have to wait and see what they decide to do with that. That is a little scarey but we will get thru it. There is still a long long way to go but these positive baby steps the doctors said we will take any day. There is a big man above watching over us and I know that our first little boy Dalton is watching over his little brother and giving him the strength. I will try so hard and get some pictures posted because you guys have got to see this little fighter...... he is a miracle. This team of doctors and surgeons here are amazing and trying everything they can but still giving Dylan all of the credit!! We still love any extra prayers we can get. Brad and I know he is in the best place and we are holding onto our hope now more than ever! God Bless you Dylan!

Oct 2 / day 1 at UIHC...

Dylan is such a trooper. He is holding up well. He isn't any better or worse today, Monday. He still has not gone potty which is now our number one concern. They are having a hard time getting a blood pressure reading on him but his skin coloring looks good and from a lung stand point things are good. His vent settings are good and oxygen settings are minimal. They were unable to get an arterial line in him which would prevent them from having to poke him to get blood as they do every couple of hours. So they are continuing to have to poke at his heel which is looking really really sore. They put a heel warmer on him to soften it before they draw the blood. They have him on numerous medications too many to name. He is still farely sedated but starting to come out of that. They still have him on a small amount of pain medication which is good because we don't want him to have much pain. Other than that this is really an observation period. The doctors are so nice and professional. You can really tell that this is the best of the best here. This place is huge. I think that it took Brad a mile walk or so just to find a pop machine! Dylan is in bay 1 which is where the sickest babies are in the NICU. Everything is a secured entry which makes us feel even more comfortable. Not just anyone can go in and see Dylan, only mommy and daddy unless we take in a visitor with us. The machines are mostly similar to the other hospital. His bed is different. It is not enclosed as the other was. There is a heater above his head that is sensetive to his body temperature. When the body temp drops the heater kicks on until he warms up to the exact temp they have set. There are numerous teams of doctors that come in and check on Dylan daily. Between 9:30-11am the doctors do rounds we are welcome to set in there and listen but for now we are a little nervous because the team is so big. Dr does give us an update and the nurses are always letting us know what is going on. We are encouraged and not giving up. Although mildly sedated Dylan does respond when we talk to him. He moves his mouth and legs and hands. He knows mommy and daddy are doing the best for him and he is our little fighter. He definetly is not giving up and neither are we!! Our little miracle baby is here and God is going to let us bring him home!!!

Arrival at U of I...

It took just over an hour for the nurses and flight crew to get Dylan ready for his helicopter transport. It was so scarey. We made the decision to have Dylan baptized before the transfer incase something went terribly wrong. The Dr still did not recommend this but I was flat out honest. We had already lost our first son Dalton because he was born at 19 weeks and 5 days gestation and there was nothing we could do. Because of the incompenent cervix we arn't positively sure another pregnancy will work and we have this beautiful baby Dylan here now that we arn't going to give up on. In his first 2 weeks and 2 days of life he has shown how strong he is and what a little fighter, he isn't giving up. Our family came and followed us for the 30 min trip to Iowa City. We arrived at the Childrens Hospital around 11:15. The nurse said Dylan had not arrived yet and they would notify us when he was settled. Around 11:30 still nothing, I called St. Lukes and they notified us he took off from the flight pad at around 11:05pm and should be arriving any time. At 11:33 he arrived. The flight nurses from St. Lukes came up to us in the family area and told us he was a trooper for the flight. He handled it well, his stats didn't drop and he kept peeking at them when it got a little bumpy. I felt so good that they had the courtesy to come and notify us that all was okay. Soon later the Pedatric surgeon came up and notified us that they needed to do a little procedure ASAP or he wouldn't make it thru the night. They were making two incisions on each side of the tummy to let some of the fluid drain out. This is for the NEC they are concerned about. They do this before they would do surgery for a preferation in the intestines. The procedure took only 5 minutes and they gave him sedatives and morphine for pain. Now we just sit and wait to see if this helps to seal over the preferation in the intestines which 50/50 chance it can. It was late, Brad and I had cried all we could cry. Our families were with us until 3 in the morning and we were scared for our little boy. But there is no doubt in my mind he is in the right place here. The Dr is wonderful and positive and I am holding tightly onto our glimmer of hope!!!

Transport Day October 1st...

I called the nurse this morning to see how Dylans night was. She said great. He had not gone potty much though but they were able to keep his vent settings down and he was not requiring much oxygen support. Brad and I were feeling positive about the day. So Brad stayed at home in the morning to do some yard work and I got to the hospital with some fresh milk for the little one. Within two hours things had changed. Dylan had a little blood in his stool and that was not good. This was a sign that the intestional concern was very much a concern, this is called NEC. They ordered an ultrasound of his tummy to see if there was a preferation in his intestines. There was not. This was good news but still scarey. Thru the day Dylan had two stools and they showed no signs of blood but his urine output was not much at all. Brad came up right away and we spent the day praying over the little guy. Because of high fluid retention his weight is up to 1 pount 12 ounces. Actual body weight being approx. 1 pound 6-7 ounces. Around 6pm Brad and I went to the cafeteria to eat supper. When we came back they had already done another tummy ultrasound. The results were not good. The nurse practitioner noticed a preferation in his intestional wall. This is what we did not want, this means Dylan does have NEC. She called in the doctor to have him look at the x-ray to make sure. The other thing is that St. Lukes does not do surgery for NEC and only the U of I does but they were not sure it was recommended or even if they would do it because of the things Dylan has going against him. 3 infections, very minimal renal function, low blood pressure and NEC. The Dr came in and gave us the worst news of our life. Dylan does have NEC and that Dr said there was less than a 1% chance Dylan would make it. Our poor little miracle who had fought thru his first two weeks of his life and now the Dr said this. I had my mind made up, we were transporting Dyland to U of I and that was all there was to it. The Dr at the hospital we were at did not recommend this because of the things going against Dylan. I was holding onto this little bit of hope inside of me, Brad was concerned and didn't know what to do. Well around 9pm we gave the go ahead to make the transfer. I wanted a second oppinion from a Dr who would possibly do the surgery. Dylan was being airlifted to the University of Iowa Childrens Hospital and we were praying like crazy. Our little boy just had to make it, he is a fighter and he knows his mommy and daddy are doing the best for him.

3rd Infection

Friday and Saturday the 29th and 30th the blood culture from two days ago is showing signs of a 3rd infection. Bacterial ecoli in the intestines. This makes Dylan at risk for an inflammatory "disease" called NEC. This is very dangerous for preemie babies. This is where part of the bowl dies and it has to be surgically removed. So they started treating Dylan for NEC by giving him a medication. He still had not gone potty much the later part of the 12 hours on Saturday. This was concerning, was his kidney function worsening? We didn't know. Dylan had been able to start feedings again though and was handling them well. They increased the amount from 1.5-3 and he was digesting it all. Dylan started to put on fluid weight because of the kidney function not releasing it out of his body. They have given him blood transfusion to help with the oxygen levels, they have given him platlats to help clot his blood and his blood pressure is very veriable. This is starting to get scarey again. Saturday night we were though comfortable enough to get some sleep at home. So far Dylans nights are better than his days and he is still fighting on, he is such a strong little boy. He continues to let the nurses know what he likes and doesn't like and when he wants to be flipped he will de-stat. He has those nurses wrapped around his finger at such a young age!!

2nd Infection

Dylan came down with another infection today the 26th. The blood culture is showing signs of Grand Negative Bacterial Infection. This is concerning as it can turn into a fungal infection which is not good. So they started him on more medicine, gave him a blood transfusion, more dopamine and a couple of bolis' to see if it would help him go potty. I didn't Kangaroo today and they didn't move him because he was so sick. He didn't move much or open his eyes all day. Dr was honest and told us in the morning he didn't know if Dylan would recover. This is not what I needed to hear. So I called Dylans dad and had him come up and talk tot he doctor after he got off work early. Well by the time Brad came up there, Dylan had started to go potty a little bit and was a little more active. The Dr. was more positive at this time. This was better news than I had heard in the morning. I was still positive as I knew my little boy would get better. The 27th Dylan was going potty more, his kidneys by the numbers looked worse but by the way he was acting that was a positive sign even though the blood work showed otherwise. The 28th when I came into see the little guy he had been awake since 5:30am, he was so alert and just looking around and wouldn't go back to sleep. It was 11 am before he would take a nap, silly little boy. He was definetly feeling better!! So we decided to Kangaroo again today. I was totally fine with it. They were going to change his bed out again during the process. The RT remembered I liked warm blankets so she ran for them once Dylan was on me. Dylan got a sore on his ear from not being able to be moved the other day when he was so sick. So this ear was down on my chest hoping it would help it a little bit. He did a great job and Dylan and Mommy both loved it!! At just 2 hours I had to go potty and they decided to move him back. On the way back RT noticed that something was pulling his tube, the nurse said lets continue on. They moved him back and the RT noticed NO vibration in his chest, this was terrible the vent tube had been extracted. I stepped out to call daddy and when I came back the Dr was in there. They had to replace the vent tube which is not something they like to do. They got it in and Brad and I were angry. The Dr. was angry as he thought that something as far as the checks and balances was not right. He would correct that for the next time we went to Kangaroo, our poor little boy. What he has gone thru and we are only able to help him in spirit...

1st Infection

Saturday the 23rd and Sunday the 24th Dyland started showing signs of his first infection. He was quite a bit less active and he wasn't going potty as much as before. This was a sign his kidneys may be starting to shut down. This is the scariest thing we have gone thru. The blood culture is showing it may be a Staph infection and this is affecting his lungs as well. They had do go up on his vent settings which until this point were very low. They started him on medicine and dopamine to try and get him going potty. Monday the 25th we had a scarey situation with Dylans nurse. But despite the signs of infection we decided to Kangaroo with Dylan again. I was nervous but they thought it would be good for Dylan. We got all situated and about 90 min into Kangarooing he was destating. His oxygen would drop and it heart rate would too. Dr came in and tried to comfort me but the doctor was thinking that something with his vent tube was mechanically wrong. They had to stop the vent and bag him for 15-20 min on me. I was so nervous but trying to be calm for Dylan so he would feel my tension. It knew that he was going to be okay but I was scared. The doctor decided despite the bagging they would put him back into his own bed. During this and after they could look at him better in his own bed they figured out his vent tube had been repositioned. The fixed this and his heart rate and breathing came right back up on their own. I just knew though that Dylan didn't feel good. He was not as active on me and he was not looking around much at all. This was the beginning of a scarey couple of days.

Sept. 21 1st day Kangarooing

Today we had Kerri for a nurse and she asked if I wanted to Kangaroo with Dylan. This is skin to skin care. This would be my first opportunity to hold him! The nurse got me positioned on a cart and she made sure everything was set up before moving Dylan. She got my bed positioned to the right height and moved the IV cart within reach. They were also swapping his bed out while he was on me so they made sure the new bed was ready to be brought in. So it came time to move Dylan onto my chest, it went without a hitch!! All was great and 3 1/2 hours later it was time to move Dylan back. His new bed was ready and the transport process went great. Dylan at one point was at 100% oxygen and only needing 26% support. This was remarkable. He loved his mommy holding him!