Transport Day October 1st...

I called the nurse this morning to see how Dylans night was. She said great. He had not gone potty much though but they were able to keep his vent settings down and he was not requiring much oxygen support. Brad and I were feeling positive about the day. So Brad stayed at home in the morning to do some yard work and I got to the hospital with some fresh milk for the little one. Within two hours things had changed. Dylan had a little blood in his stool and that was not good. This was a sign that the intestional concern was very much a concern, this is called NEC. They ordered an ultrasound of his tummy to see if there was a preferation in his intestines. There was not. This was good news but still scarey. Thru the day Dylan had two stools and they showed no signs of blood but his urine output was not much at all. Brad came up right away and we spent the day praying over the little guy. Because of high fluid retention his weight is up to 1 pount 12 ounces. Actual body weight being approx. 1 pound 6-7 ounces. Around 6pm Brad and I went to the cafeteria to eat supper. When we came back they had already done another tummy ultrasound. The results were not good. The nurse practitioner noticed a preferation in his intestional wall. This is what we did not want, this means Dylan does have NEC. She called in the doctor to have him look at the x-ray to make sure. The other thing is that St. Lukes does not do surgery for NEC and only the U of I does but they were not sure it was recommended or even if they would do it because of the things Dylan has going against him. 3 infections, very minimal renal function, low blood pressure and NEC. The Dr came in and gave us the worst news of our life. Dylan does have NEC and that Dr said there was less than a 1% chance Dylan would make it. Our poor little miracle who had fought thru his first two weeks of his life and now the Dr said this. I had my mind made up, we were transporting Dyland to U of I and that was all there was to it. The Dr at the hospital we were at did not recommend this because of the things going against Dylan. I was holding onto this little bit of hope inside of me, Brad was concerned and didn't know what to do. Well around 9pm we gave the go ahead to make the transfer. I wanted a second oppinion from a Dr who would possibly do the surgery. Dylan was being airlifted to the University of Iowa Childrens Hospital and we were praying like crazy. Our little boy just had to make it, he is a fighter and he knows his mommy and daddy are doing the best for him.