Oct 6th / Iowa Homecoming weekend....

Well today is a pretty good day. Iowa homecoming is this weekend and people are definetly showing team spirit around this neck of the woods. Brad and I are actually staying in Iowa City tonight to prevent us from driving back here in traffic tomorrow and trying to get a parking spot. Dylan is showing his team spirit with and Iowa Football blanket on today, it is pretty cute. His dad will appreciate that as we are big Iowa fans in our family! Dylan is down to 1 pound and 13.5 ounces, this is expected as he is getting out some of that extra fluid he has retained. He will probably have to have a small operation on Monday we were told today. They are having a hard time getting IV's in him, last night the flight nurse tried and was unsuccessful. So with this operation they will put something in him that is similar to a port. This way they will be able to draw blood from this as well as admin meds thru it. I am a little scared about this but it will prevent him from being poked all of the time, his heels are looking pretty "ouchy" from being poked several times per day. So they are probable they will have to do this on Monday but wanted to tell us about it today incase his hemoglobin gets any lower and they have to do it this weekend. They are still planning for surgery to surgically close the PDA (duct around the heart) in 7-14 days. They are weaning him off of one of the meds that is keeping his blood pressure up, it has been good so they decided to wean him off that. His blood cultures are still negative which is great news but he still does have the Grand Negative bacterial infection in his trachea, this is concerning but we pray it gets better though it probably won't be gone over night. The incisions they made on the side of his tummy are still looking good, the surgeon came in today and said that the tubes may actually back out on their own when they are ready. This is great news but they will continue to watch this closely. So we are still showing some positive baby steps but still a long way to go. He is a little fighter and continues to remind us of that as he still trys to move his head forgetting his vent tube is in his mouth and he can't do that. Today he found his hand and we have caught him with his fingers in his mouth a couple of times. It is so sweet!!!!! So pray for a good weekend, we will take these small positive baby steps any day for our sweet little boy!